If you’re reading this, chances are you or someone you know receives home infusions, but if you aren’t familiar with home infusions or are just looking into starting – home infusions are basically what they sound like – when you get your infusions done at home 🙂 

Depending on the specific situation, a nurse will usually come to the house, start the infusion, and stay until it’s finished. This option is typically available to patients who receive medications regularly or on a scheduled basis, so they don’t have to go to the hospital or infusion clinic every time they need their treatment.

As a patient who initially underwent the process inpatient and at a clinic, being able to stay in your PJs on your couch, with access to your dog, the TV, your family, etc., makes an absolute WORLD of difference in transforming what is often a really painful and stressful experience into something much better.

HOWEVER – there are downsides and one of those is that all of the supplies that will be needed for these infusions – has to be shipped and stored at your house. I know that is a very minor inconvenience and one I would easily put up with a million times over before having to go back to having to leave for my treatments – but when you are running around with an IV in your hand unable to find your $10,000 bottle of treatment or that last needle you swore you had in the shipment box that accidentally got thrown out – it can be VERY stressful and make the infusion experience more overwhelming.

That’s why I wanted to make this post for YOU because I have been there and I found a way to make it so that you don’t have to worry about your supplies (at least about keeping track of, organizing and storing them) anymore!

If you have been following me for a bit, then you probably know my story and how I was diagnosed with a plethora of conditions with my primary one being Autoimmune Autonomic Ganglionopathy – which for the last 3 years, every single Friday, I have been getting Intravenous Immunoglobulin infusions (also known as I.V.I.G. – donations of plasma from 20,000 donors).

These infusions have been really hard for me, not going to lie. I cry every single time. They are really mentally, physically, emotionally and in every way you can think of – hard. 

That is absolutely not to say I am not grateful and thankful for all the donors and the access that I fought so hard to get – it has been my greatest gift and blessing – BUT – that doesn’t mean that infusion days are not hard. So anything I can do to make them easier – I do!

One of the things that made these days more stressful was managing ALL of the supplies. There are SO many and it can be hard to keep track of them, stay organized and actually know what you have – making the actual infusion day an absolute stressful mess.

For the first 2.5 years, I lived out of the boxes and bags that the supplies came in, never knowing what I really had and always scrambling to find what I needed when it was time for my infusion. My supplies were scattered all over the house, and I would often have to run around looking for forgotten or misplaced items, IV still in my arm. It was a stressful and inefficient process, and I would spend each week worrying about whether I had everything I needed and frantically calling the pharmacy if I suddenly realized I was out of something.

Then, my nurse suggested that I try using a rolling cart to store all my medical supplies in one place. I was skeptical at first, but after looking into it and buying one, I can say without hesitation that this thing changed the game for me!