The podcast for those living
with Dysautonomia
Do you ever wish you had someone to talk to that truly understood what it’s like living with Dysautonomia?
Someone to walk alongside you as you both navigate everything from treatments and research to dating, working and friendships?
Well grab your favorite electrolyte drink, put your feet up (literally) and join your dys-FUNCTIONAL family!
The podcast for those living
with Dysautonomia
Do you ever wish you had someone to talk to that truly understood what it’s like living with Dysautonomia?
Someone to walk alongside you as you both navigate everything from treatments and research to dating, working and friendships?
Well grab your favorite electrolyte drink, put your feet up (literally) and join your dys-FUNCTIONAL family!
The podcast for those living
with Dysautonomia
Do you ever wish you had someone to talk to that truly understood what it’s like living with Dysautonomia?
Someone to walk alongside you as you both navigate everything from treatments and research to dating, working and friendships?
Well grab your favorite electrolyte drink, put your feet up (literally) and join your dys-FUNCTIONAL family!
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Try to think about all the things your body does automatically to keep you alive without you having to think about it like managing heart rate, blood pressure, blood sugar, breathing, digestion, pupil dilation, temperature regulation and so much more.
Now imagine if all of that didn’t work right.
That is dysautonomia.
Host – Haley James
Try to think about all the things your body does automatically to keep you alive without you having to think about it like managing heart rate, blood pressure, blood sugar, breathing, digestion, pupil dilation, temperature regulation and so much more.
Now imagine if all of that didn’t work right.
That is dysautonomia.
Host – Haley James
Try to think about all the things your body does automatically to keep you alive without you having to think about it like managing heart rate, blood pressure, blood sugar, breathing, digestion, pupil dilation, temperature regulation and so much more.
Now imagine if all of that didn’t work right.
That is dysautonomia.
Host – Haley James
Sounds overwhelming, right?
As someone with three autonomic disorders and many dysautonomia-related comorbidities, I can attest that it absolutely is.
I’m Haley James, your host, and for me, one of the hardest parts has been feeling alone in my struggle as I try to learn to navigate life with these conditions. These are conditions that friends, family, society, and even many doctors know nothing about and have trouble understanding.
However, I’ve found that having a community of people who do understand what I am going through has been essential to getting me through the good, bad, and dizzy days.
That’s why I wanted to create this podcast. I want you to feel like you have people to turn to and a space to ask questions, a support system to rely on, and a place where you can feel heard, understood, and seen.
I would love nothing more than to have you join me on our quest to explore the answers to these questions!
So grab your favorite form of hydration, escape the heat, and let the DYS-FUNCTIONAL discussions begin!
Sounds overwhelming, right?
As someone with three autonomic disorders and many dysautonomia-related comorbidities, I can attest that it absolutely is.
I’m Haley James, your host, and for me, one of the hardest parts has been feeling alone in my struggle as I try to learn to navigate life with these conditions. These are conditions that friends, family, society, and even many doctors know nothing about and have trouble understanding.
However, I’ve found that having a community of people who do understand what I am going through has been essential to getting me through the good, bad, and dizzy days.
That’s why I wanted to create this podcast. I want you to feel like you have people to turn to and a space to ask questions, a support system to rely on, and a place where you can feel heard, understood, and seen.
I would love nothing more than to have you join me on our quest to explore the answers to these questions!
So grab your favorite form of hydration, escape the heat, and let the DYS-FUNCTIONAL discussions begin!
What is Dysautonomia?
Dysautonomia is a general umbrella term for a group of disorders where the Autonomic Nervous System, the nervous system that controls all automatic body functions, doesn’t work the way it should (learn more here). Dysautonomia presents a unique set of circumstances that make diagnosing, managing, treating, studying and living with it, really difficult.
Dysautonomia is a general umbrella term for a group of disorders where the Autonomic Nervous System, the nervous system that controls all automatic body functions, doesn’t work the way it should (learn more here). Dysautonomia presents a unique set of circumstances that make diagnosing, managing, treating, studying and living with it, really difficult.
On average, it takes most patients 5 years and 11 months to be diagnosed. During which time many of these patients are told there is nothing wrong and that it’s all in their head.
Most doctors don’t know about Dysautonomia, and there are actually only around 180 doctors in the world certified and specialized in autonomic disorders.
Only a few facilities have the equipment and doctors to diagnose the condition, and they are always booked far out, with people even traveling from other countries just to be seen.
On average, it takes most patients 5 years and 11 months to be diagnosed. During which time many of these patients are told there is nothing wrong and that it’s all in their head.
Most doctors don’t know about Dysautonomia, and there are actually only around 180 doctors in the world certified and specialized in autonomic disorders.
Most doctors don’t know about Dysautonomia, and there are actually only around 180 doctors in the world certified and specialized in autonomic disorders.
Only a few facilities have the equipment and doctors to diagnose the condition, and they are always booked far out, with people even traveling from other countries just to be seen.
Dysautonomia impacts every organ function to some degree which can have patients seeing many specialists at one time to try to manage all the symptoms and comorbidities.
Certain types of Dysautonomia conditions such as POTS, can be as disabling as congestive heart failure, leaving on average 40% of patients unable to work.
There is no cure for dysautonomia-type conditions, and due to lack of research and awareness, there aren’t many management protocols available or approved either.
Certain types of Dysautonomia conditions such as POTS, can be as disabling as congestive heart failure, leaving on average 40% of patients unable to work.
There is no cure for dysautonomia-type conditions, and due to lack of research and awareness, there aren’t many management protocols available or approved either.
Let’s be completely honest here; all of this combined can be painful, lonely, scary, isolating, and confusing to navigate when you feel like no one understands or that you are going it alone.
But with the dys-FUNCTIONAL podcast, now you don’t have to.
Let’s be completely honest here; all of this combined can be painful, lonely, scary, isolating, and confusing to navigate when you feel like no one understands or that you are going it alone.
But with the dys-FUNCTIONAL podcast, now you don’t have to.
Each week, we feature a fellow Dysautonomia warrior, a medical professional, researcher, specialist, caregiver, and more as we discuss some of the biggest and most common questions you have about Dysautonomia.
We cover topics like friendships, advocacy, treatments, dating, medications, laws, relationships, research, self-confidence, and much more. Our focus is on how to navigate and find joy despite the conditions we have or the circumstances we are in.
We are here to be your friends, your guides, and your support team. We want you to know that you are not alone in what you are going through, and that you WILL make it through, no matter how difficult this moment may feel. We are here to help, support, and stand by you right where you are.
Additionally, we aim to provide you with as many resources as possible to help you navigate and thrive in your own Dysautonomia journey.
We can’t wait to have you join our dys-FUNCTIONAL fam!
Each week, we feature a fellow Dysautonomia warrior, a medical professional, researcher, specialist, caregiver, and more as we discuss some of the biggest and most common questions you have about Dysautonomia.
We cover topics like friendships, advocacy, treatments, dating, medications, laws, relationships, research, self-confidence, and much more. Our focus is on how to navigate and find joy despite the conditions we have or the circumstances we are in.
We are here to be your friends, your guides, and your support team. We want you to know that you are not alone in what you are going through, and that you WILL make it through, no matter how difficult this moment may feel. We are here to help, support, and stand by you right where you are.
Additionally, we aim to provide you with as many resources as possible to help you navigate and thrive in your own Dysautonomia journey.
We can’t wait to have you join our dys-FUNCTIONAL fam!
listen to our latest episodes
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Or search for the dys-FUNCTIONAL podcast wherever you listen!
Tune into the show on your favorite platform!
Or search for the dys-FUNCTIONAL podcast wherever you listen!
Hey Haley! Can you talk about...
Submit your topic requests or questions you’d like to hear discussed on the show here, and we will do our best to include and address them in upcoming episodes!
Hey Haley! Can you talk about...
Submit your topic requests or questions you’d like to hear discussed on the show here, and we will do our best to include and address them in upcoming episodes!
Hey Haley! Can you talk about...
Submit your topic requests or questions you’d like to hear discussed on the show here, and we will do our best to include and address them in upcoming episodes!
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Come Join the fam on the broadcast channel!
Come join us and the rest of the collective @dysfunctionalpodcast on our Instagram broadcast channel “The dys-FUNCTIONAL Fam” where you can give your opinions and requests on who you want to see on the pod, make suggestions as to what topics you want talked about, tell us what products you would like to learn more about and get discounts on, learn and keep up-to-date on advocacy and ways to get involved, get special broadcast channel only discounts and so much more! Just head on over to our instagram @dysfunctionalpodcast and click the broadcast channel in our bio to join! Can’t wait to have you!
Come join us and the rest of the collective @dysfunctionalpodcast on our Instagram broadcast channel “The dys-FUNCTIONAL Fam” where you can give your opinions and requests on who you want to see on the pod, make suggestions as to what topics you want talked about, tell us what products you would like to learn more about and get discounts on, learn and keep up-to-date on advocacy and ways to get involved, get special broadcast channel only discounts and so much more! Just head on over to our instagram @dysfunctionalpodcast and click the broadcast channel in our bio to join! Can’t wait to have you!
Come join us and the rest of the collective @dysfunctionalpodcast on our Instagram broadcast channel “The dys-FUNCTIONAL Fam” where you can give your opinions and requests on who you want to see on the pod, make suggestions as to what topics you want talked about, tell us what products you would like to learn more about and get discounts on, learn and keep up-to-date on advocacy and ways to get involved, get special broadcast channel only discounts and so much more! Just head on over to our instagram @dysfunctionalpodcast and click the broadcast channel in our bio to join! Can’t wait to have you!
Each week, we bring doctors, practitioners, caregivers, autonomic experts, and Dysautonomia warriors to the mic to discuss tips, strategies, the latest research, treatments, real life stories and answers to your questions to help you figure out how to function with dysautonomia.
Each week, we bring doctors, practitioners, caregivers, autonomic experts, and Dysautonomia warriors to the mic to discuss tips, strategies, the latest research, treatments, real life stories and answers to your questions to help you figure out how to function with dysautonomia.
Each week, we bring doctors, practitioners, caregivers, autonomic experts, and Dysautonomia warriors to the mic to discuss tips, strategies, the latest research, treatments, real life stories and answers to your questions to help you figure out how to function with dysautonomia.
